Final Version September, 27th/2013
“Roles of Kidney Foundations in the Emerging World”

October 6th-9th, 2013
Riu Plaza Hotel
Guadalajara, Jal. México



Proudly hosted by:

  • Fundación Hospitales Civiles de Guadalajara, A.C.
  • Fundación Mexicana del Riñón, A.C.
  • Fundación Stella Vega, A.C.
  • Asociación Ale, A.C.
  • Asociación para el Estudio de la Acidosis Tubular Renal, A.C.



Program Committee:
Héctor Raúl Pérez Gómez
Guillermo García García
Ann Wilson (Australia)
Paul Shay
Alejandro Treviño Becerra
(Mexico, City)
Timur Erk
Paul Beerkens
Tom Oostrom
Marianne Vennegoor


Local Organizing Committee:
Guillermo García García, MD
(Una Solucion de Vida, A.C.)
Mr. Felipe Vázquez Aldana
(Una Solucion de Vida, A.C.)
Mr. Leopoldo Muro Pico
(Hospitales Civiles de Guadalajara Foundation)
Mrs. Lourdes Agredano Delgadillo
(Hospitales Civiles de Guadalajara Foundation)
Ms. Claudia Amador Soto,
Conference Secretariat (Hospitales Civiles de Guadalajara Foundation)
Alfonso Gutiérrez-Padilla MD
(Hospitales Civiles de Guadalajara Foundation)


Fundación Stella Vega, A.C. (Guadalajara)
Corporativa de Fundaciones, A.C.
Una Solución de Vida, A.C.
Consejo Estatal de Trasplante de Órganos y Tejidos. Jalisco (CETOT)
Fundación Mexicana del Riñón, A.C.
PiSA Farmacéutica, S.A. de C.V.



Saturday, 5th October, 2013
16:00 – 19:00



Day 1: Sunday 6th October, 2013
08:00 - 13:00
08:00 - 10:00
1st IFKF Board Meeting (by invitation only)
09:00 - 17:00
Joint Session. Holistic Management of Kidney Disease (Part I)
Chairs: Alejandro Treviño-Becerra and María Bianchi
09:00 - 09:10
Welcome and Introduction
Guillermo García García (México)
09:10 - 09:40
Nutritional management
(in collaboration with the Mexican Association of Renal Nutrition Specialists (AMENUR)
Fabiola Martín del Campo, MN
(Guadalajara, México)
09:40 - 10:10
Psycho-social aspects
Clicerio Rojas Santes, LPsy
(Guadalajara, México)
10:10 - 10:40
Exercise training
Héctor Pérez-Grovas
(México City)
10:40 - 11:10
Andrea Nijhuis
(The Netherlands)
11:10 - 11:30
Coffee Break
11:30 - 12:45
Parallel Workshops
Workshop 1  

Workshop 2

Holistic Management of Kidney Disease (Part II)
(Participants: Nurses, Dietitians & Social Workers, Doctors)

  Dialysis and Transplant Patients Forum
(In collaboration with the Jalisco Network of Kidney Associations) (Participants: Dialysis and Transplant patients and families. In collaboration with local kidney associations)
Chairs: Marianne Vennegoor (UK) & Maria Eugenia Bianchi   Chairs:

11:30 - 11:55
Medical Management
Dr. Alejandro Treviño-Becerra
(México City)

11:55 - 12:20
Psycho-spiritual support to ESRD patients.
Mrs. Nidia Elorriaga de Álvarez (Guadalajara, México)

12:20 - 12:45
Educational websites
Marianne Vennegoor (UK)


11:30 - 11:55
When Health Systems are Barriers to Health Care: The case of Mexican Kidney Patients.
Francisco J. Mercado, PhD
(Guadalajara, Mexico)

11:55 - 12:20
Report on the 1st. Forum on ESRD
Jalisco Network of Kidney Foundations.
Blanca Díaz Medina, LPsy
(Guadalajara, México)

12:20 - 12:45
The role of nurses in CKD management.
Yolanda Martínez, R.N.
(Guadalajara, México)

13:00 - 13:45
Opening Ceremony
13:45 - 14:45

14:45 - 17:45
Meetings of Kidney Foundations by Type of Organization
Co-Chairs: Anne Wilson & Tom Oostrom

Attendees meet in three small groups to share their foundations' work. Each participant is asked to arrive prepared to share one success, one challenge and one innovation from his or her organization, followed by a discussion. A short summary from each small group will be presented in plenary between 17:00 and 17:30. Small groups will take their break when convenient.

  • Kidney Foundations from the developed world (Meeting Room: TBC, Facilitator: Paul Shay)
  • Kidney Foundations from emerging countries (Meeting Room: TBC, Facilitator: TBC)
  • Kidney Foundations that are treatment providers: (Meeting Room: TBC, Facilitator: Ayse Onat TBC)
17:00 - 17:45
Plenary presentation of a ten-minute summary from each group
19:00 - 22:00
Welcome Reception and Dinner



Day 2: Monday 7th October, 2013
07:30 - 08:50
08:00 - 17:00
09:00 - 12:00
Session 1: Government advocacy: Contributions of Kidney Foundations and Associations.
Chairs: Paul Shay (Canada) & Gerardo Rodríguez (Guadalajara, México)
09:00 - 09:30
Success factors in government advocacy
Mr. Carlos Castro
(Los Mochis, México)
09:30 - 10:00
How to be effective in government advocacy
Lic. Paola Migoya Velázquez
(México City)
10:00 - 10:30
Advancing the Public Health Agenda –impacting health policy
Allan Collins
10:30 - 10:50
Coffee Break
10:50 - 12:00
Workshop on Government Advocacy and Advancing the Public Health Agenda – impacting health policy
Chairs: Mark Murphy (Ireland) & Carlos Castro (México City)
Representatives from emerging and developed countries report their experiences in government advocacy. Each presenter has a 10 min presentation, followed by a 30 min discussion at the conclusion of all presentations.
10:50 - 11:40
Government Advocacy in developed countries
Government advocacy in emerging countries
11:40 - 12:00
Group discussion - recommendations
12:00 - 13:00
13:00 - 15:00
Session 2. Fundraising
Co-Chairs: & Tom Oostrom (The Netherlands) & Kazuyoshi Okada (Japan)

13:00 - 13:30
How to succeed in fundraising
Lic. David Pérez-Rulfo Torres
(Guadalajara, México).
Panel Discussion: Fundraising (case studies)

13:30 - 14:15
Fundraising in Kidney Foundations in the developed world
Panelists TBC based on responses to questionnaire
14:15 - 15:00
Fundraising in Kidney Foundations in the emerging countries
Gerardo Rodríguez
(Guadalajara, México), and other panelists TBC based on responses to questionnaire.
15:00 - 15:20
Coffee Break
15:20 - 16:40
Session 3: Making your Kidney Foundation work
Chairs: Fernanda Arce Amaré (México City) and Ayla San (Turkey)
15:20 - 15:45
The role of social networking
Adelina Filigrana Valenzuela
(México, City)

15:45 - 16:10
Government funding for kidney foundation’s project work
Lic. Claudia Erika Espinosa Lara
Subdirectora de Asistencia y Capacitación del Programa de Coinversión Social, de la Dirección General Adjunta de Vinculación y Coinversión Social.
(México City)

16:00 - 16:20
The role of leadership (film clip)
Simon Sinek: How great leaders inspire action to move on
16:20 - 16:40
Coffee Break
16:40 - 18:00
Poster Session
Chair: Joel Kopple & Miguel Riella

16:40 - 17:20
Best Poster Categories

  • World Kidney Day 2013
  • IFKF & Kidney Foundations Activities
17:20 - 18:00
Oral Presentations of the Best Posters in each Categories
18:00 - 18:30
Group Photo
19:30 - 20:00
Travel to dinner location
20:00 - 22:00
Dinner. Poster, Joel Kopple Award and International Challenge Award Ceremony.
Timur Erk



Day 3: Tuesday 8th October, 2013
07:30 - 08:50
2nd. Board meeting (by invitation only)
08:00 - 17:00

09:00 - 10:15
Session 4. World Kidney Day Session
Chairs: Charles Kernahan & Paul Beerkens

  • WKD 2013 Review of Activities
  • WKD 2014 Preview Future Plans
10:15 - 10:45
Coffee Break
10:45 - 12:15
To include current status and initial thoughts and ideas for the future.
Chairs: Charles Kernahan & Timur Erk
12:15 - 13:00
IFKF Council and Annual General Meeting
Co-Chairs: Charles Kernahan & Timur Erk
13:00 - 14:00

14:00 - 15:30
30 Panel Discussion: What is the future for IFKF and how do we achieve this.
To include future objectives, expected outcomes, partnerships, funding of IFKF and how we manage the administration and secretariat for the future.
Chair: Charles Kernahan, supported by Board Members

See below some thought provoking potential discussion points for both Panel Discussion sessions:

  • Integrating and interacting with the growing number of small kidney foundations and associations around the globe.
  • Adding value to larger well established Kidney Foundations - balancing the interests large and small organizations.
  • Strategies to increase and retain membership.
  • Sustainability and how we fund our objectives and planned outcome.
  • Interacting and partnership with renal health care professionals nurses, health and patient organizations.
  • Contribution by Education Committee.
  • Frequency of meetings (annual vs. bi-annual meetings; organization of regional conferences.
  • Conclusions
15:40 - 16:10
Coffee Break

16:10 - 16:30
Invited Lecture
Chairs: Francisco Mercado (Guadalajara) & Lynn Kulasingham (Malaysia)

Organ Donation: a simple decision with enormous consequences.
Mr. Reginald Green (USA)


Travel to Dinner location

Social Event and Dinner at Casa Tequila Herradura,
Hacienda San Jose del Refugio, Amatitán, Jal.



Day 4: Wednesday 9th October, 2013
07:30 - 08:50
3rd IFKF Board Meeting (by invitation only)

09:00 - 10:00
SESSION 8 : Panel Discussion: Setting-up Kidney Foundations in the Emerging World
Chairs: Ana Michelle López (Honduras) & Miguel Riella

  • Kidney foundations representatives from around the world report their experiences. Each presenter has a 10 min presentation, followed by a 20 min. discussion.
  • A representative sample of kidney foundations around the globe
10:00 - 10:30
Coffee Break
11:30 - 11:00
Meeting wrap-up and Adjourn